|Patient engagement is there too!|
The authors point out that patient engagement is a phenomenon in Great Britain, the United Arab Emirates, India and the United States:
England's "Big White Wall" is an online community accessible via handhelds or computers where persons with psychological distress can find support in managing their care. Participation is anonymous and is covered (£100 for 6 months) by some of the local National Health Service organizations or by employers directly. There are questionnaires, guided support programs, moderated discussion groups and individual 'live" therapy (£75 per session). Supporters point to data that suggests there are fewer physician visits that result in a net savings.
The United Arab Emirates' pattern of tribal consanguinity has led to a high incidence of inherited genetic disease. In response, the UAE recruited and paid student "ambassadors" to lecture about genetic screening among the country's university student population. That plus mandated screening plus coverage of the cost has led to an increased tribal acceptance of screening for thalassemia and sickle cell disease.
In India, a checklist was promoted and given to new mothers to help them spot danger signs in their babies within a week of birth. The checklist was loaded on the mom's cell phones, which was sent prompts about looking for problems, such as breathing difficulty or poor feeding. If there was an "yes" answer to any question on the list, the health system was alerted.
In the U.S., Boston's Deaconess Hospital identified a hundred patient and family "advisors" who sit on ten committees and give input into various quality improvement projects in the institution. This has facilitated the ability of patients and families to view their test results on line, get prescription refills or trigger an inpatient concern.